Hello everyone. I am 52 and was just diagnosed last year. I’ve had it since I was 18 which was my first episode but it went undiagnosed. Anyway, my feet hurt mostly every single day. And at about the same time, in the evening. You’d think I worked a double shift and I didn’t. They feel swollen, my ankles get stiff and I end up having to lay down super early. What the hell does this mean? Does anyone else get this on their feet?
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Diagnosed at 60 though they figured had it for 17-18 years, ankles especially my left plus foot hurt every evening, because if the walking swinging out at tines and foot almost trips up quite a bit does not keep up so applies lot of pressure so causes pain. I apply lots of Tiger balm or Icy Hot and will on and off take extra strength Tylenol or Advil
I have the exact same problem, each morning my feet are in so much pain. I take Zaldiar for the pain, it helps me so much, If I do not take them for a few days the pain returns so bad. BUT it does not mean the pain goes away completly, it just makes it more managable for me.
Thank you both. I just wanted some kind of validation that it’s “not in my head”. For years I gaslighted my own self with my symptoms and I would just tell myself “it’s not real, it’s all in your head” so yes, I did feel better after my congfirmed diagnosis. When the feet issues began I started doing the same thing, gaslighting my own self. I will do some research on things I can do that can help. I just feel lonely, like no one understands what I’m feeling because it’s all so weird.
Hi Rose - I'm so sorry to hear you're dealing with this. Yes, foot pain, swelling, and stiffness are unfortunately pretty common with MS. It could be due to various factors, like muscle weakness, nerve damage, or even something like spasticity. Many people with MS experience similar symptoms. Have you been able to talk to your doctor about these symptoms yet? It’s always worth checking in to see if there’s a way to make things more manageable.
I'm so happy they were finally able to diagnose you - It can be such a relief to have an answer, even though it doesn't make the symptoms any easier. It sounds like you're dealing with a lot, and I totally understand how frustrating that must be. I have symptoms in my feet but its more of a tingly sensation. Same thing though - I have to sit down at night and of course I feel it more when im going to bed.