ms life community

My family is the type that will flat out call you lazy or no good because you only have burst of energy and are forced to conserve for it to last. In my case the more physical stuff I do the shaker I get and my brain starts losing focus. The question is how to deal with people saying this when there is nothing you can do to stop it

Anyone use Zocdoc to find a neurologists? Havent had the best success rate.

Just a quick heads up to everyone - i saw this on Instagram and wanted to share.

One of the most important relationships you'll have in your MS journey is with your neurologist. Whether you're newly diagnosed or have been managing MS for years, having a doctor who truly listens, understands your needs, and stays up to date on treatment options is key.

🔍 Types of Neurologists & What They Offer:

• General Neurologist – Treats a wide range of neurological conditions, including MS.

• MS Specialist – Focuses specifically on multiple sclerosis, often involved in research and clinical trials.

• Neuroimmunologist – Specializes in autoimmune-related neurological conditions, including MS.

  
  

💡 What to Look for in a Neurologist:✔️ Specialization in MS – Not all neurologists have in-depth experience with MS. An MS specialist may offer a more tailored approach.✔️ Knowledge of the Latest Treatments – MS research is evolving, and new treatments are regularly emerging. Your doctor should be informed about disease-modifying therapies (DMTs) and clinical trials.✔️ Open to Holistic Care – MS is more than just medication. A good neurologist considers physical therapy, diet, mental health, and lifestyle changes.✔️ Good Communication – You should feel heard, understood, and comfortable asking questions.✔️ Accessible & Responsive – Timely appointments, clear guidance, and support when flare-ups occur.

🧠 Making the Most of Your Neurology Appointments:📌 Keep a symptom journal to track any new or worsening symptoms.📌 Prepare a list of questions about treatments, side effects, and lifestyle adjustments.📌 Ask about MRI frequency, lab tests, and any new research that might apply to your case.

Hope to see everyone at Climb to the Top in NYC - a day full of climbing stairs at the New York Mets Stadium! Lets go Mets!

Hello everyone. I am 52 and was just diagnosed last year. I’ve had it since I was 18 which was my first episode but it went undiagnosed. Anyway, my feet hurt mostly every single day. And at about the same time, in the evening. You’d think I worked a double shift and I didn’t. They feel swollen, my ankles get stiff and I end up having to lay down super early. What the hell does this mean? Does anyone else get this on their feet?